Alexa News

"We were hoping to grant everyone's wishes and prayers today with good news, but unfortunately it is our lot to pass on the devastating information we received from the doctors.

On top of her disease not getting better, it has worsened. The doctors said that her disease is the worst NB there is and that it is very rare to see something like this where the treatment did not help in any way.

We are making plans to leave Philadelphia tomorrow and get Alexa back home where she can continue to recover and be happiest.

Disney World will be rushed now as it was in the doctor's advice to take her as soon as possible. "Four months is a long time away". We will be going with Alexa as soon as Make-A-Wish can get us there. Just the three of us. We need the time with her and we need to see her happy. It is important for all of us.

I don't have to tell you how we are feeling. The only solace we have is that we did everything we could for her and there will be no what-ifs. It is our duty to now give her the best quality of life we can until that is no longer possible.

There is no telling on time. The doctors said they see children with disease as bad as hers go weeks to months without symptoms. Alexa will tell her own story, but we are to expect that it will be sooner than later.

Thank you all for joining us on this incredible journey. Without all of your support we could never have been as strong. I will continue to post as long as we have a story to tell.

Alexa is beautiful today."

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