FREAKING GREAT NEWS!!!

Everyone! My niece, Alexa, is doing BETTER! It is a bloody miracle!! From my sister's blog on Alexa:

I want to talk a little more about the scan results. The bones being clear is amazing. The last time we did this kind of a scan was in July and at that time she had disease in both her hips, knees, right femur, right arm, ribs, skull and eye bones. To have that all gone is astounding. Her tumor in the chest shrinking is also crazy. The last time we saw anything shrink was after the very first round of chemo 2 years ago and that was minimal at best. Nothing has worked well on her in 2 years and now we finally have found this wonder drug that is working for her.

The even more unbelievable thing is that this drug in the past has not shown to help regress the disease at all. At best it has kept things stable. The way ABT-751 works at a molecular level is to keep tumors at bay, not regress them. So the fact that it is doing so in Alexa is awesome. She has always written her own ticket.

I want to emphasize that we are by no means in the clear as far as the NB goes. She is not close to being NED (no evidence of disease) and in all likelihood will never get there. BUT this buys us time and time is the most precious gift of all.

We will really get a better reading with the bone marrow biopsy and then the MIBG in early December after a couple more rounds of medicine. The MIBG is the best tool for finding disease in NB kids.

Freaking crap! I am so grateful to a Heavenly Father who loves my family. I am grateful to Jesus Christ who broke the bonds of death and offered himself up for an Atonement that truly heals. HOLLA AT YA GODHEAD! LOVE YOU DUDES!